Children Affected by HIV and AIDS

The HIV/AIDS pandemic is having a devastating impact on the well-being of children, particularly in those countries with the highest HIV prevalence rates in sub-Saharan Africa, the Caribbean, and parts of Asia. The virus affects children in multiple ways; they may lose one or both parents and other family members, or become infected with the disease.

Aside from the physical and psychosocial stress associated with the onset of the disease itself and the experience of loss of loved ones, children affected by HIV/AIDS may additionally be subjected to the burden of caring for others, stigma, discrimination, exploitation, abuse, financial hardships, and are less likely to attend school. The social and economic effects of the disease means that areas with high AIDS-related mortality are less able to provide traditional family and community care, protection and basic services for its children.

Children with HIV-positive parents are at a greater risk of being orphaned, abandoned, removed by social services, placed into foster or institutional care, becoming homeless, or left to head households on their own. Orphaned children infected with the virus often have more difficulty obtaining care. Families and communities have rallied to provide kinship care to the large majority of the children who have lost their parents, however families and communities are struggling to cope, physically and financially, with the numbers of children involved. Despite international recognition of the damaging effects of institutional care and its high costs, institutional care has proliferated, often supported by external groups wanting to help. Far too little has been done in such countries to systematically strengthen and support HIV/AIDS-affected families and families caring for orphans, or to develop family-and community-based care for children without adequate family care.

Children should be cared for by their immediate and extended families wherever possible, with support services put in place to avoid abandonment. Regulated kinship, foster care, and local adoption should be developed for children without close relatives. Young people and communities should be provided with information on HIV/AIDS to avoid infection. Adequate medical treatment is needed to enable infected parents to live longer and to prevent HIV transmission from mother to child.

The literature in this section includes background information on countries and projects tackling the crises, including statistics, policy papers, implementation projects, and care options for children orphaned or infected by HIV/AIDS.

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Linking Safety Nets, Social Protection, and Poverty Reduction: Directions for Africa

Michelle Adato, Akhter Ahmed, and Francie Lund, 2004

A short discussion of various safety net program options and considerations for effective program design. Focus on reducing poverty in sub-Saharan Africa

Child Protection: A Handbook for Parliamentarians

Dan O'Donnell and Dan Seymour, 2004

A handbook that includes examples of the many ways in which Parliaments and their members around the world have responded to the challenges of child protection through laws, policies, advocacy and other means. It also describes how Parliaments and their members can gain a clearer understanding of what their contribution can be, and equips them with the knowledge and tools they require to make that contribution.

Small Voices, Big Concerns: A Child Rights Approach to HIV/AIDS

Jane Blackhurst, Sarah Collen, and Helen Young, 2004

Outlines how a child rights approach can be used to strengthen policy implementation and provides recommendations as to how the EU institutions can move forward in implementing commitments to OVC.

Monitoring and Evaluation: Discovering and Utilizing Sound Practices

Catholic Relief Services and USAID, 2004

This brief outlines Monitoring and Evaluation sound practices of “spot checking” when costs can be prohibitive and the use of “station days”, a participatory method to collect accurate data on children.

Orphans in Africa: Parental Death, Poverty and School Enrollment

Anne Case, Christina Paxson, and Joseph Ableidinger, 31 Dec 2003

Research on the incidence, living arrangements, and causes of lower school enrollment of orphans in Sub-Saharan Africa.

Africa's Orphaned Generations

UNICEF, 01 Nov 2003

This paper reports on the life circumstances of today’s orphaned children in Africa with new data and fresh analyses. The report presents a strategy for ensuring that all of Africa’s orphaned children have a safe, healthy and well-educated childhood, establishing the foundation for a productive adult life and for their countries’ overall development. Therefore, this paper encourages hope in the face of an epic disaster as it offers the possibility of change for those already orphaned and for the generation to come.

Survey of Orphans and Vulnerable Children in Rwanda and Zambia

N/A, 2003

A sample survey designed to be used in interviewing parents and guardians of children ages six to twelve years old. The questions assess household financial security, socio-demographic and community characteristics, psychosocial intervention exposure, income generation intervention exposure, health status, HIV/AIDS prevention exposure, legal rights, and coping skills. Includes sample consent form.

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Are Orphans Especially Vulnerable? Evidence from Rwanda

Corinne Siaens, K. Subbarao, and Quentin Wodon, 2003

This research paper explores the condition of orphaned children in Rwanda. The paper urges the design of appropriate social protection mechanisms, including differentiated policy responses, conditional cash transfers and increased access to education.

Speak for the Child: Case Study: Kenya

Diane Lusk, Jael Mararu, Chloe O'Gara, and Sarah Dastur, 2003

A case study of a pilot project in western Kenya focused on community-based orphan care and support. Includes a description of the project activities, including community mobilization and needs assessment, as well as lessons learned and suggestions for improvement.

Forgotten Families: Older People as Carers of Orphans and Vulnerable Children

Help Age International and the International HIV/AIDS Alliance , 2003

A publication by International AIDS Alliance and HelpAge International provides an overview of the issues identified by older people and orphans and vulnerable children themselves; examples of community-based programs that are improving the lives of older people and orphans and vulnerable children; recommendations that will help to prioritize orphans and their carers within HIV/AIDS and wider development policies, programs and research.